Evalution of Family Life Quality of Parents with Intellectual Disability Children

Çigdem Müge Hayli, Dilek Demir Kösem, Nazli Melis Misyagci

Abstract


This study was conducted to evaluate the quality of family life of parents with intellectually disabled children and to emphasize its importance. It is a descriptive study. The study group of the research consisted of parents with intellectual disabilities children. The data required for the research are; It was collected by online survey (Google form) method from 300 parents who participated voluntarily and selected by simple sampling with written consent. The socio-demographic data collection form for parents and the Beach Center Family Quality of Life Scale (BCFQLS) were used to collect data, and t-tests and regression analysis were used in data analysis. It was concluded that the family quality of life perceptions of the parents participating in the study was moderate. However, it was determined that the quality of family life related to family interaction, parenting, emotional competence, physical/material/financial competence, and support for inadequacy was low. In the study, it was found that the variables of the number of children of the participating parents and the disability level of the disabled child had a significant effect on family interaction, parenting, emotional competence, financial/physical/material competence, and support for disability (p<0.05). It has been concluded that the quality of family life of the parents is affected by many variables such as the disabled status of their children. Conducting research that will increase the family life quality of parents in the field will be guiding.

Keywords: Intellectual disability, family quality of life


Keywords


Disability, intellectual with children, parents, life, family quality of life

Full Text:

PDF

References


Akandere, M., Acar, M., & Ba?tu?, G. (2009). Examination of Life Satisfaction and Hopelessness Levels of Parents with Mentally and Physically Handicapped Children. Selcuk University Journal of Social Sciences Institute, 22:23-32.

Aydiner-Boylu, A. (2007). Examination of Some Objective and Subjective Indicators Affecting Families' Quality of Life, (Unpublished doctoral dissertation), Hacettepe University/Social Sciences Institute, Ankara.

Aysan, F., & Ozben, S. (2007). Examination of Variables Related to Quality of Life of Parents with Disabled Children. Dokuz Eylül University Buca Education Faculty Journal, 22:1-6.

Beach Centre on Disability at the University of Kansas (2006). In partnership with families, service providers, and researchers. Family Quality of Life Survey. Beach Center: University of Kansas.

Bertelli, M., Bianco, A., Rossi, M., Scuticchio, D., & Brown, I. (2011). Relationship between individual quality of life and family quality of life for people with intellectual disability living in Italy. Journal of Intellectual Disability Research, 55(12):1136-1150.

Erdoganoglu, Y., & Kerem-Günel, M. (2007). Investigation of Health-Related Quality of Life of Families of Children with Cerebral Paralysis. Bulletin of Community Medicine, 26(2):35-39.

Hastings, R. P., & Brown, T. (2002). Behavior Problems of Children with Autism, Parental Self-Efficacy, and Mental Health. American Journal on Mental Retardation, 3(107):222-232.

Meral, B. F. (2011). Investigation of Family Quality of Life Perceptions of Mothers of Children with Developmental Disabilities, (Unpublished doctoral dissertation), Anadolu University/Institute of Educational Sciences, Eskiehir.

Meral, B. F., & Cavkaytar, A. (2013). Turkish Adaptation, Validity and Reliability Study of the Beach Centre Family Quality of Life Scale. Education and Science, 38(170):48-60.

Milgram, N. A., & Atzil, M. (1988). Parenting Stress in Raising Autistic Children. Journal of Autism and Developmental Disorders, 3(18):415-424.

Nail, S., Kutlu, R., & Celik, H. H. (2011). Depression and factors affecting quality of life in relatives of cancer patients. Gülhane Medical Journal, 4(53):248-253.

??po?, R., Predescu, E., Mure?an, G., & Iftene, F. (2012). The Evaluation of Family Quality of Life of Children with Autism Spectrum Disorder and Attention Deficit Hyperactive Disorder. Applied Medical Informatics, 30(1):1-18.

Soresi, S., Nota, L., & Ferrari, L. (2007). Considerations on Supports That Can Increase the Quality of Life of Parents of Children with Disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4(4):248-251.


Refbacks

  • There are currently no refbacks.




Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.

ISSN: 2454-6623